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Navigating a Rare Cornelia deLange Syndrome diagnosis for Freya while still being a Mom of 4

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Videos

Freya’s Lucky Arm

00:12:38

Can we get Freya to smile for family pictures?

5,574 views

2 days ago

Freya’s Lucky Arm

00:15:58

How did the meeting for kindergarten go? Special education

8,595 views

7 days ago

Freya’s Lucky Arm

00:11:09

Filling out kindergarten assessment and Quick update

6,830 views

9 days ago

Freya’s Lucky Arm

00:07:29

Disappointing news at the ENT

9,831 views

12 days ago

Freya’s Lucky Arm

00:05:33

Introducing Freya’s Lucky Adventures mini golf and arcade

6,392 views

2 weeks ago

Freya’s Lucky Arm

00:13:56

She loved this | Inclusive spring break splash pad and s’mores

9,661 views

2 weeks ago

Freya’s Lucky Arm

00:11:26

All of Freya’s pediatric mobility devices

8,439 views

2 weeks ago

Freya’s Lucky Arm

00:16:49

What is occupational therapy?

7,490 views

3 weeks ago

Freya’s Lucky Arm

00:13:24

Freya is pushing her own wheelchair! GI appointment

12,177 views

3 weeks ago

Freya’s Lucky Arm

00:20:10

New mobility device for Freya | Doona Liki Trike

30,057 views

1 month ago

Freya’s Lucky Arm

00:19:40

Medical Mama Morning Routine

8,071 views

1 month ago

Freya’s Lucky Arm

00:16:00

Day in the life afternoon with Freya

8,832 views

1 month ago

Popular videos

Freya’s Lucky Arm

00:11:38

Bubbles and the gait trainer

100,931 views

2 years ago

Freya’s Lucky Arm

00:23:45

Freya’s birth story Cornelia de Lange Syndrome

98,727 views

2 years ago

Freya’s Lucky Arm

00:12:15

What is CdLS? Our explanation and how it effects Freya

77,267 views

2 years ago

Freya’s Lucky Arm

00:13:16

Our diagnosis journey Cornelia de Lange Syndrome

74,397 views

2 years ago

Freya’s Lucky Arm

00:13:28

I thought this would take years! Freya pushes her own wheelchair

62,471 views

11 months ago

Freya’s Lucky Arm

00:21:18

My pregnancy with Freya Cornelia deLange Syndrome

60,668 views

2 years ago

Freya’s Lucky Arm

00:13:52

What Freya eats in a day

58,552 views

2 years ago

Freya’s Lucky Arm

00:11:09

Not the news we were hoping for | GI update

47,856 views

10 months ago

Freya’s Lucky Arm

00:08:56

Neurology update

43,001 views

5 months ago

Freya’s Lucky Arm

00:17:44

Will she need surgery? | Broken elbow

42,355 views

1 year ago

Freya’s Lucky Arm

00:13:12

Freya bedroom tour | introducing toy rotation

36,810 views

2 years ago

Freya’s Lucky Arm

00:15:12

Life expectancy of CdLS | Freya crawling

36,015 views

2 years ago

Past live streams

Freya’s Lucky Arm

00:43:46

Questions for Freya’s teacher

4,889 views

Streamed 2 months ago

Freya’s Lucky Arm

00:30:36

Freya’s Lucky Arm is live!

3,407 views

Streamed 4 months ago

Freya’s Lucky Arm

00:51:00

Thanksgiving traditiona

4,959 views

Streamed 5 months ago

Freya’s Lucky Arm

00:43:04

What will Freya take to preschool

6,339 views

Streamed 8 months ago

Freya’s Lucky Arm

00:49:17

Recap of Freya's procedures

7,976 views

Streamed 10 months ago

Freya’s Lucky Arm

00:12:25

We figured it out!

4,020 views

Streamed 11 months ago

Freya’s Lucky Arm

00:17:57

Trying to figure out how to control the chat

2,051 views

Streamed 11 months ago

Freya’s Lucky Arm

00:39:40

Cornelia de Lange Syndrome Awareness Day

4,846 views

Streamed 11 months ago

Freya’s Lucky Arm

00:51:59

Freya’s Lucky Arm is live!

3,985 views

Streamed 1 year ago

Freya’s Lucky Arm

00:40:21

Freya’s Lucky Arm is live! Catch up with us

5,098 views

Streamed 1 year ago

Freya’s Lucky Arm

00:42:24

Freya’s Lucky Arm is live!

5,217 views

Streamed 1 year ago

Freya’s Lucky Arm

00:40:17

Freya’s Lucky Arm EEG and new diagnosis

10,901 views

Streamed 1 year ago